Support network for people with alopecia areata, totalis, or universalis. Goals are to set up support groups around the country, educate the public, raise funds for research, and publish bimonthly newsletter. On Facebook.
Read moreAdvocates for the Independent Living Movement, which aims to strengthen independent living centers through technical assistance and other membership services. Newsletter, information and referrals, and conferences.
Read moreSupport groups and information regarding primary and secondary lymphedema for patients and professionals. Information on the prevention and management of primary and secondary lymphedema.
Read moreSupport and information for people who have psoriasis, their families, and friends. Education to increase public awareness of the disorder. Fundraising for research. Newsletter, pen pals, networks, referrals, and group development guidelines.
Read morePromotes the welfare of persons with Scleroderma and their families. Education, support groups, peer counseling, referrals, fundraising, newsletter, educational materials, and group development guidelines.
Read moreSSF provides patients with practical information and coping strategies that minimize the effects of Sjögren’s. In addition, the Foundation is the clearinghouse for medical information and is the recognized national advocate for Sjögren’s.
Read moreMutual support helping patients with scleroderma and their families cope with the illness. Funds research. Literature, medical reference lists, assistance in starting groups, conferences, newsletter, information, and referrals.
Read moreHealth organization for patients with life-threatening Wegener’s granulomatosis and related vascular diseases. Information and newsletter for patients and physicians. Educates families, friends, and the public about effects, symptoms, and treatment.
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