The Reeve Foundation’s Living with Paralysis and Caring for a Family Member Living with Paralysis support groups provide an opportunity for members to connect with others who understand what they are going through and to gain support, insight and guidance. Separate groups are held for individuals living with quadriplegia, those living with paraplegia, and family
Read moreSupport group serving Myositis, Dematomyositis(DM),Polymyositis (PM), Inclusion Body Myositis (IBM) people in southern Kansas and northern Oklahoma.
Read moreEducation and support for malignant hyperthermia susceptible families, information for health care professionals, and limited research. Newsletters and regional conferences. Malignant hyperthermia (MH) is a potentially fatal, inherited disorder usually associated with the administration of certain general anesthetics and/or the drug succinylcholine. The disorder is due to an acceleration of metabolism in skeletal muscle.
Read moreSupport, information, resources, and awareness for those affected by Brachial Plexus Injury.
Read moreFights neuromuscular diseases through worldwide research, nationwide network of clinics, professional and public education, and newsletter.
Read moreAdvocates for the Independent Living Movement, which aims to strengthen independent living centers through technical assistance and other membership services. Newsletter, information and referrals, and conferences.
Read moreThe National Fibromyalgia Association’s mission is to develop and execute programs dedicated to improving the quality of life for people with fibromyalgia.
Read moreProvides information and conducts research on arthritis and musculoskeletal and skin diseases. Division of the National Institute of Health
Read morePublic and professional education. Direct support for biomedical research into causes, prevention, and treatment of osteoporosis. Advocates for federal research. Newsletter, information and referrals, conferences, and group development guidelines.
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