Blood & Marrow Transplant Information Network (BMT InfoNet) is dedicated to providing transplant patients, survivors and their loved ones with emotional support and high quality, easy-to-understand information about bone marrow, peripheral blood stem cell and cord blood transplants.
Read moreFor persons with temporomandibular joint dysfunction. Newsletter, information, phone support, literature, legislative action, and assistance in starting groups.
Read moreCCA’s mission is to empower and give hope to individuals and families affected by facial differences.
Read moreMutual support and networking for families affected by Transverse Myelitis. Acts as a clearinghouse for information. Literature, pen pals, advocacy, group meetings, and phone support.
Read moreAssists children and adults with craniofacial disorders resulting from disease, accident, or birth defect. Financial assistance, referrals to support groups, information, referrals to services and medical professionals, and newsletter.
Read moreSupport group serving Myositis, Dematomyositis(DM),Polymyositis (PM), Inclusion Body Myositis (IBM) people in southern Kansas and northern Oklahoma.
Read moreEducation and support for malignant hyperthermia susceptible families, information for health care professionals, and limited research. Newsletters and regional conferences. Malignant hyperthermia (MH) is a potentially fatal, inherited disorder usually associated with the administration of certain general anesthetics and/or the drug succinylcholine. The disorder is due to an acceleration of metabolism in skeletal muscle.
Read moreSupport, information, resources, and awareness for those affected by Brachial Plexus Injury.
Read moreFights neuromuscular diseases through worldwide research, nationwide network of clinics, professional and public education, and newsletter.
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