Health/Physical Illness: Brain/Stroke – Support Groups in Kansas

Epilepsy Foundation of Missouri and Kansas

Supoort for those experiencing epilepsy or loved ones impacted by epilepsy

Christopher and Dana Reeve Foundation

The Reeve Foundation’s Living with Paralysis and Caring for a Family Member Living with Paralysis support groups provide an opportunity for members to connect with others who understand what they are going through and to gain support, insight and guidance. Separate groups are held for individuals living with quadriplegia, those living with paraplegia, and family

Brain Injury Association of Kansas & Greater Kansas City

Online support groups, information, and support for those living with brain injuries and those caring for them.

Search for updated groups at https://biaks.org/  

National Hydrocephalus Foundation

Support and information for adults with hydrocephalus and for parents of children with hydrocephalus. Provides knowledge, education, support, and assists in finding medical care. We’re here when you need someone to share with.

Dysphonia International

Promotes the care and welfare of those with spasmodic dysphonia and their families. Aims to increase public awareness, encourages formation of local support groups, and raises funds for research.

American Stroke Association

Dedicated to reducing the incidence and impact of stroke through prevention, treatment, rehabilitation, support, and research. Research fellowships in cerebrovascular disease. Newsletter, professional publication, referrals, and help starting groups.

National Organization for Rare Disease (NORD)

Communication among families affected by hypomyelination or myelin deficient disorders, and professionals. Aims to increase awareness and fund research. Information, referrals, phone support, parent link, advocacy, and newsletter.

Pediatric Brain Tumor Foundation

As the world’s leading nonprofit dedicated to children and teens with brain tumors, the Pediatric Brain Tumor Foundation’s mission is to care for families along their journey, cure all childhood brain tumors, and help survivors and families thrive. Events, information, resources, financial help, mentoring, research.

Amyotrophic Lateral Sclerosis (ALS) Association

Support and education for caregivers and patients of people with ALS.

Pituitary Network Association

Mutual support for persons with all types of pituitary tumors, including acromegaly. Promotes early diagnosis, medical and public awareness, continued research to find a cure, newsletter, information, referrals, phone support, and support group meetings.