Health/Physical Illness: Cardiac – Support Groups in Kansas

Alstrom Syndrome International

Mutual support, encouragement, and networking for families affected by Alstrom Syndrome, research scientists, and physicians. Facebook, Twitter, newsletter.

The CHARGE Syndrome Foundation

Networking of families affected by coloboma of the eye, heart defect, atresia of the nasal passages, retardation of growth and development, genital hypoplasia, and ear malformations. Booklets, newsletter, information, referrals, and conferences.

Congenital Heart Defects Families Association

Resource and groups Supports to families with an adult or children with Congenital Heart Defect. Support includes care packages when having open heart surgery, family activities, online and face-to-face support groups and a free summer camp for kids with heart defects.

The Mended Hearts Inc

For persons who have heart disease, their families, friends, and other interested persons. Peer support, quarterly magazine, and information.

National Council on Independent Living

Advocates for the Independent Living Movement, which aims to strengthen independent living centers through technical assistance and other membership services. Newsletter, information and referrals, and conferences.

National Heart, Lung, and Blood Institute

Information on the treatment and prevention of high blood pressure and high blood cholesterol.

Turning Point – The University of Kansas Health System

This organization hosts a variety of psychosocial session to empower and transform the mind, body, and spirit of individuals, families, and friends living with serious or chronic physical illness. Check website or call for current groups.