Kansas Commission for the Deaf and Hard of Hearing

The Kansas Commission for the Deaf and Hard of Hearing (KCDHH) is a state agency authorized to develop and implement a program of information and referral, advocacy, public education and direct services.  Based in Topeka, KCDHH works with agencies and organizations throughout Kansas to assure availability and coordination of services for people who are

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Pediatric Brain Tumor Foundation

As the world’s leading nonprofit dedicated to children and teens with brain tumors, the Pediatric Brain Tumor Foundation’s mission is to care for families along their journey, cure all childhood brain tumors, and help survivors and families thrive. Events, information, resources, financial help, mentoring, research.

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Leukemia and Lymphoma Society

The Leukemia & Lymphoma Society’s Mid-America Chapter serves residents in Kansas and Missouri who have been touched by one of the blood cancers: leukemia, lymphoma and myeloma.

Gives connections to local events in support of Leukemia, Lymphoma, and Myeloma patients and research.

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American Liver Foundation

Dedicated to fighting liver diseases through research, education, and patient groups. Members include patients, families, professionals, and supporters. Groups organized and operated by lay volunteers. Newsletter and group development guidelines.

 

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Foundation Glycosylation

The Foundation of Glycosylation was established in order to support research for the development of therapies targeting CDG, to help raise awareness of the disorder and to advocate for individuals living with this enzyme deficiency.

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La Familia Senior Community Center

Provide services to Seniors and their families, which include social, health, voter assistance, recreational, education, cultural and tax preparation. Staff with bilingual staff.

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Periodic Paralysis International

In-depth source of medically accurate information about periodic paralyses drawn from peer-reviewed texts and journals, plus surveys and case studies conducted within our patient population over the past five years.

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Trisomy International Parent Support (9-TIPS)

9TIPS is an international support group for families dealing with Trisomy 9 covering all variations. This includes Trisomy 9p, Trisomy 9 Mosaic, Trisomy 9q etc.  Our goal is to provide families with support through a parent network system, to share their successes and experiences with each other. Option to participate in a daily email listserv if

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