The Reeve Foundation’s Living with Paralysis and Caring for a Family Member Living with Paralysis support groups provide an opportunity for members to connect with others who understand what they are going through and to gain support, insight and guidance. Separate groups are held for individuals living with quadriplegia, those living with paraplegia, and family
Read moreEmotional support and information for persons with alpha 1 antitrypsin and their families. Networking of members through newsletter, sharing of current information on treatments and research, pen pals, newsletter, and group development guidelines.
Read moreDedicated to improving educational success of children with special need and/or gifts and talents.
Information and resources on a variety of issues, including Attention Deficit Disorder, gifted children, behavior disorders, inclusion, etc. Advocacy and professional development activities.
Read moreFor people with ichthyosis, offers referrals, public and professional education, support group development guidelines, research on treatment and cure, newsletter, pen pals, annual conference, and dues.
Read moreResource and online group Opportunity for support and personal contact for those with MSUD and their families. Information on MSUD. Strengthens the liaison between families and professionals and encourages research and newborn screening. Quarterly newsletter.
Read moreOffers information, financial support for medication and referrals to other support groups
Read moreSupport for persons affected by pseudoxanthoma elasticum (PXE), their families and friends. Support groups, phone and mail contacts, literature, and quarterly newsletter. Maintains database of physicians. Supports, funds, and directs research.
Read moreSupport, information, and coping skills for families affected by Xeroderma Pigmentosum. Quarterly newsletter, referrals, literature, phone support, pen pals, conferences, advocacy, and summer camp for patients of all ages and their families.
Read moreMutual support, encouragement, and networking for families affected by Alstrom Syndrome, research scientists, and physicians. Facebook, Twitter, newsletter.
Read moreSupport for those affected by Crohn’s Disease or Ulcerative Colitis, and their caregivers.
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