Interstitial Cystitis Association
Education, information, and support groups for those with interstitial cystitis and their spouses and families. Quarterly newsletter. On Facebook.
Read moreHealth/Physical Illness: Gynecology/Urology
Irritable Bowel Syndrome Self Help and Support Group
Mutual support for persons with irritable bowel syndrome, their families, and health care professionals. Information, support, advocacy, and assistance in starting similar groups.
Read moreMaple Syrup Urine Disease Family Support Group
Resource and online group Opportunity for support and personal contact for those with MSUD and their families. Information on MSUD. Strengthens the liaison between families and professionals and encourages research and newborn screening. Quarterly newsletter.
Read moreNational Council on Independent Living
Advocates for the Independent Living Movement, which aims to strengthen independent living centers through technical assistance and other membership services. Newsletter, information and referrals, and conferences.
Read moreNational Ovarian Cancer Coalition (NOCC)
Promotes education and awareness regarding ovarian cancer for patients, families, and medical community. Information, referrals, conferences, literature, phone support, and networking.
Read moreNational Urea Cycle Disorders Foundation
Links families, friends, professionals, and the public, who are interested in the identification, treatment and cure of urea cycle disorders. Supports, educates, and promotes research. Newsletter.
Read moreThe Menopause Society
A multidisciplinary, nonprofit organization that acts as a forum for a multitude of scientific disciplines with an interest in human female menopause. The mission is to promote understanding of menopause and the health of women.
Read moreRoswell Park Familial Ovarian Cancer Center
Information on the warning signs of cancer, diagnostic tests, and family history. Sponsored by Roswell Park Cancer Institute.
Read more(HERS) Foundation – Hysterectomy Educational Resources and Services
Information about alternatives to and consequences of hysterectomy. Helps network women together for support. Fee for quarterly newsletter. Group development guidelines.
Read moreInternational Endometriosis Association
Information exchange, mutual support, educational materials, and newsletter. Conducts and promotes research. Phone support network, wide variety of literature, and chapter development guidelines.
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