Serves All Counties – Page 17 – Support Groups in Kansas

myFace

Assists individuals, primarily children, with severe facial deformity from birth, disease, or accident, in receiving comprehensive reconstructive treatment at the Institute of Reconstructive Plastic Surgery at NYU Medical Center.

National Foundation for Ectodermal Dysplasias (NFED)

Distributes information on symptoms and treatments, support programs for families, newsletter, family and regional conferences, member directory, dental implant program, and scholarships.

PKD Foundation- Kansas City Chapter

These meetings are planned with YOU in mind. Guests are welcome.

Spina Bifida Association

Encourages educational and vocational development of patients. Promotes public awareness, advocacy, and research. Newsletter, chapter development guidelines, adoption referral program, scholarships, and film/videotapes.

United Spinal Association

To promote independence for paralyzed veterans, enhance their health and medical care, and protect the civil rights of the disabled. Monthly newsletter. Serves New York, New Jersey, Pennsylvania, and Connecticut.