Support for persons affected by pseudoxanthoma elasticum (PXE), their families and friends. Support groups, phone and mail contacts, literature, and quarterly newsletter. Maintains database of physicians. Supports, funds, and directs research.
Read moreSecond Wind is dedicated to improving the quality of life for lung transplant recipients, lung surgery candidates, people with related pulmonary concerns and their families, caregivers and friends by providing support, advocacy, education, information and guidance through a spirit of service, adding years to their lives and life to their years.
Read moreSSF provides patients with practical information and coping strategies that minimize the effects of Sjögren’s. In addition, the Foundation is the clearinghouse for medical information and is the recognized national advocate for Sjögren’s.
Read moreGrants the dreams and wishes of chronically and terminally ill children ages 3 to 21.
Read more9TIPS is an international support group for families dealing with Trisomy 9 covering all variations. This includes Trisomy 9p, Trisomy 9 Mosaic, Trisomy 9q etc. Our goal is to provide families with support through a parent network system, to share their successes and experiences with each other. Option to participate in a daily email listserv if
Read moreA nonprofit membership organization providing support and information to the spousal caregiver of the chronically ill or disabled. Services include a newsletter, local support groups, telephone support groups, an online forum, and an annual weekend conference.
Read moreInformation, education, and mutual support for patients, their families, and friends. Consumer advocacy, educational materials, quarterly newspaper, biannual magazine, and chapter development guidelines.
Read moreSupport and advocacy for persons with Angelman syndrome (a neurological disorder) their families, and interested others. Education, information, referrals, literature, newsletter, conferences, fund raising activities, and research promotion.
Read moreDesigned to aid and support bereaved parents and their families who are struggling to survive their grief after the death of a child. Information, referrals, newsletter, phone support, and conferences.
Read moreChemically Dependent Anonymous is a 12-step fellowship for anyone seeking freedom from drug and alcohol addiction. We of CDA do not make distinctions in the recovery process based on any particular substance. The basis of our program is abstinence from all mood-changing and mind-altering chemicals, including street-type drugs, alcohol and unnecessary medication.
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