Networking of families affected by coloboma of the eye, heart defect, atresia of the nasal passages, retardation of growth and development, genital hypoplasia, and ear malformations. Booklets, newsletter, information, referrals, and conferences.
Meeting Info:
Please visit the website for current support group and contact information, and resources.
Fees:
Unknown
Website:
http://www.chargesyndrome.org/