National Council on Independent Living

Advocates for the Independent Living Movement, which aims to strengthen independent living centers through technical assistance and other membership services. Newsletter, information and referrals, and conferences.

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Oley Foundation

Promotes optimal care and quality of life for those requiring long-term tube or IV feeding at home. Newsletter, online chat forum, information clearinghouse, outreach system of patient volunteers, annual conference, and research support.

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Support Organization For Trisomy (SOFT)

Support organization for Trisomy 18, Trisomy 13, and related disorders (SOFT) 

 

SOFT values education to empower families and professionals through the Trisomy journey. 

SOFT values and celebrates hope through sharing our stories to celebrate the legacy and value each child brings to their Trisomy journey. 

SOFT values research, discovery and current knowledge of

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American Chronic Pain Association, Inc.

Help for people suffering from chronic pain. Support, understanding, and sharing skills to maintain wellness. Workbook for self-help recovery, quarterly newsletter, group development guidelines, phone network, and outreach program to clinics.

Visit the website for all current information: https://theacpa.org/

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Family Voices

Speaks on behalf of children with special health care needs at the national, state, and local levels. Encourages and supports families who want to play a role in their child’s health care. Advocacy and literature (English and Spanish).

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Kansas Commission for the Deaf and Hard of Hearing

The Kansas Commission for the Deaf and Hard of Hearing (KCDHH) is a state agency authorized to develop and implement a program of information and referral, advocacy, public education and direct services.  Based in Topeka, KCDHH works with agencies and organizations throughout Kansas to assure availability and coordination of services for people who are

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Pediatric Brain Tumor Foundation

As the world’s leading nonprofit dedicated to children and teens with brain tumors, the Pediatric Brain Tumor Foundation’s mission is to care for families along their journey, cure all childhood brain tumors, and help survivors and families thrive. Events, information, resources, financial help, mentoring, research.

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Leukemia and Lymphoma Society

The Leukemia & Lymphoma Society’s Mid-America Chapter serves residents in Kansas and Missouri who have been touched by one of the blood cancers: leukemia, lymphoma and myeloma.

Gives connections to local events in support of Leukemia, Lymphoma, and Myeloma patients and research.

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