Dedicated to fighting liver diseases through research, education, and patient groups. Members include patients, families, professionals, and supporters. Groups organized and operated by lay volunteers. Newsletter and group development guidelines.
Read more
The Foundation of Glycosylation was established in order to support research for the development of therapies targeting CDG, to help raise awareness of the disorder and to advocate for individuals living with this enzyme deficiency.
Read moreProvide services to Seniors and their families, which include social, health, voter assistance, recreational, education, cultural and tax preparation. Staff with bilingual staff.
Read moreInformation about experimental drugs, treatment of AIDS, mail service, journal, and quarterly newsletter. Sponsored by Project Inform.
Read moreIn-depth source of medically accurate information about periodic paralyses drawn from peer-reviewed texts and journals, plus surveys and case studies conducted within our patient population over the past five years.
Read more9TIPS is an international support group for families dealing with Trisomy 9 covering all variations. This includes Trisomy 9p, Trisomy 9 Mosaic, Trisomy 9q etc. Our goal is to provide families with support through a parent network system, to share their successes and experiences with each other. Option to participate in a daily email listserv if
Read moreTo cure tinnitus through the development of resources that advance tinnitus research. Support groups are offered via telephone and email.
Visit website for resources and support group information: http://www.ata.org/
Read moreEducates the public about Group B Streptococcal infections during pregnancy. Information and referrals, phone support, newsletter, and assistance in developing state networks. On Facebook.
Read moreThis is a general cancer support group. It is open to anyone diagnosed with cancer, their family members, and friends.
Read moreSupport and information for adults with hydrocephalus and for parents of children with hydrocephalus. Provides knowledge, education, support, and assists in finding medical care. We’re here when you need someone to share with.
Read more