National Bone Marrow Transplant Link

Mission is to help patients, caregivers, and families cope with the social and emotional challenges of bone marrow/stem cell transplant from diagnosis through survivorship by providing vital information and personalized support services. Information and referrals to other resources and support services. 

Read more

National Lymphedema Network, Inc.

Support groups and information regarding primary and secondary lymphedema for patients and professionals. Information on the prevention and management of primary and secondary lymphedema.

Read more

Second Wind Lung Transplant Association, Inc.

Second Wind is dedicated to improving the quality of life for lung transplant recipients, lung surgery candidates, people with related pulmonary concerns and their families, caregivers and friends by providing support, advocacy, education, information and guidance through a spirit of service, adding years to their lives and life to their years.

Read more

Support Organization For Trisomy (SOFT)

Support organization for Trisomy 18, Trisomy 13, and related disorders (SOFT) 

 

SOFT values education to empower families and professionals through the Trisomy journey. 

SOFT values and celebrates hope through sharing our stories to celebrate the legacy and value each child brings to their Trisomy journey. 

SOFT values research, discovery and current knowledge of

Read more

Well Spouse Association

A nonprofit membership organization providing support and information to the spousal caregiver of the chronically ill or disabled. Services include a newsletter, local support groups, telephone support groups, an online forum, and an annual weekend conference.

Read more

Alstrom Syndrome International

Mutual support, encouragement, and networking for families affected by Alstrom Syndrome, research scientists, and physicians. Facebook, Twitter, newsletter.

Read more

Artists Recovering Through Twelve Steps (ARTS) Anonymous

Artists Recovering Through the Twelve Steps (A.R.T.S.) helps break your creative block so you can follow your inspiration and your passions. We want you to reach your full potential as a creative person. For the professional artist the A.R.T.S. program will keep you on track toward an ever higher

Read more

Fanconi Cancer Foundation

To find effective treatments and a cure for Fanconi anemia and to provide education and support services to affected families worldwide.

Read more