Helps overweight persons attain and maintain their weight goals. Promotes a sensible approach to weight control. Chapters meet weekly for discussion and programs to offer support and motivation. Newsletter and chapter development guidelines.
Read moreSupport network for anyone who cares about people with Alagille Syndrome, a genetic liver disorder. Information, education, newsletter, phone support, referrals, and scientific advisory board.
Read moreThe Arthritis Foundation offers information and tools to help people live a better life with arthritis. Whether it’s advice from medical experts to specialized arthritis self-management or exercise classes, the Arthritis Foundation has your solution.
Visit the website for current information and resources. Virtual support available, registration on website is required: http://www.
Read moreResource and For patients and families affected by Charcot-Marie-Tooth disorders (also known as peroneal muscular atrophy or hereditary motor sensory neuropathy). Referrals, newsletter, phone help, video tapes, support groups, and conferences. Please call for group times as they vary.
Read moreSupport, information, education, networking, and advocacy for individuals with facioscapulohumeral disease (Landouzy-Dejerine muscular dystrophy). General information on living with FSHD, support groups, advocy information, and assistance in starting chapters.
Read moreResources, support, information and advocacy for those suffering from gastrointestinal disorders and their support systems.
Read moreMission is to help patients, caregivers, and families cope with the social and emotional challenges of bone marrow/stem cell transplant from diagnosis through survivorship by providing vital information and personalized support services. Information and referrals to other resources and support services.
Read moreSupport groups and information regarding primary and secondary lymphedema for patients and professionals. Information on the prevention and management of primary and secondary lymphedema.
Read moreSecond Wind is dedicated to improving the quality of life for lung transplant recipients, lung surgery candidates, people with related pulmonary concerns and their families, caregivers and friends by providing support, advocacy, education, information and guidance through a spirit of service, adding years to their lives and life to their years.
Read moreSupport organization for Trisomy 18, Trisomy 13, and related disorders (SOFT)
SOFT values education to empower families and professionals through the Trisomy journey.
SOFT values and celebrates hope through sharing our stories to celebrate the legacy and value each child brings to their Trisomy journey.
SOFT values research, discovery and current knowledge of
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