For families having a child with 5P- Syndrome, a genetic disorder characterized by a high-pitched cry. Dedicated to facilitating the flow of information among affected families and medical professionals. Support groups can be located through this site, parent to parent connections as well as sibling connections are offered. Newsletters, annual meetings, and family listing available as well.
Meeting Info:
Please visit website for current contact, support group, and/or resource information.
Fees:
Unknown
Website:
https://fivepminus.org/resources/